Ages since I last posted & not entirely sure that things are progressing as I'd hoped. Generally I feel physically fine, apart from some persistent joint problems with one of my thumbs. Sounds so stupid, I know, but it's painful & very irritating. I'm mostly finding ways around using it very much, especially first thing … Continue reading Onwards?



Really does feel as if I'm beginning to get my life back now. I've only had an appointment for the regular jab (although it did take my GP surgery 3 times to actually have the right medication). Apart from that I've been doing the extra exercises every day and am beginning to feel the difference. … Continue reading Onwards

Shocking genetics specialist shortages

Been hearing a news story today around the terrible shortages of specialist staff in the field of cancer genetics: http://www.bbc.co.uk/news/health-44040896 I'm still waiting to hear back from all the genetics forms we completed, and from the request to access the medical records of 2 close relatives. That means we're still living with the constant possibility … Continue reading Shocking genetics specialist shortages